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The Power to Heal
SARS
Gulf War Illness
West Nile Virus

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Kidney Stones
Chronic Fatigue
Mycoplasma
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Mycoplasma Registry

Original Video Script for CDC's Nov 2nd Chronic Fatigue Syndrome Coordinating Committee Meeting

Mycoplasmas Are Contagious

by Sean & Leslee Dudley

Thousands of people diagnosed with Chronic Fatigue Syndrome, Fibromyalgia and Gulf War Illness, from all over our country and the world have tested positive for mycoplasmas. Mycoplasmas are contagious. Fifty-six percent of the victims on our MYCOPLASMA REGISTRY had an airborne, contagious onset.

Mycoplasmas: Family Disease It is a slow growing epidemic that is infecting and devastating entire families. Almost 60% of the Chronic Fatigue Syndrome patients on our registry, have more than one person in their households who have tested positive for mycoplasma infections. These are husbands and wives, fathers and sons, mothers and daughters, mothers & sons, extended family members and even household pets. [Slides of families tested positive

Dr. Nicolson's PCR Blood Test

Now, there is an accurate PCR blood test and protocol designed by Drs. Garth and Nancy Nicolson, to diagnose and treat these mycoplasma infections. These tests are far more accurate than previous antibody or blood culture tests. Once long term antibiotic treatment is started, patients begin recovering. No new drugs need to be developed. We and hundreds of MYCOPLASMA REGISTRY members are recovering after one to three years on antibiotics. Unfortunately the CDC's criminal diversion of CFS research funds has caused delays in diagnosis and treatment. Some patients who have suffered years of infections may need to take antibiotics for the rest of their lives. [Slide of Dr. Nicolson at The Institute for Molecular Medicine]

Dr. Lo's Mycoplasma Patent

The overwhelming body of evidence from researchers forces us to conclude that there is a national, if not global epidemic. Even Dr. Shyh-Ching Lo, pathologist for the Department of Defense who discovered and patented mycoplasma fermentans incognitus and mycoplasma penetrans states in his own patents, that Mycoplasma fermentans is the cause of Chronic Fatigue Syndrome.

United States Patent Patent Number: 5,242,820
Date of Patent: Sep. 7, 1993
Pathogenic Mycoplasma Inventor:
Shyh-Ching Lo, Potomac, Md. Assignee: American Registry of Pathology Washington, D.C [Dept. of Defense]
Filed: June 6, 1991 [originally applied for June 18, 1986]

"O. Other Disease States in Which M. fermentans incognitus Has Been Implicated In addition to AIDS, M. fermentans incognitus has been implicated in a number of other Disease states including Chronic Fatigue Syndrome, Wegener's Disease, Sarcoidosis, respiratory distress syndrome, Kiku-chi's disease, autoimmune diseases such as Collagen Vascular Disease and Lupus, and chronic debilitating diseases such as Alzheimer's Disease. M. fermentans incognitus may be either a causative agent of these diseases or a key co-factor in these diseases. P. Treatment of M. fermentans incognitus Infection M. fermentans incognitus is known to be sensitive to a number of antibiotics, including doxycycline, quinalones such as ciprofloxacin, chloramphenicol and tetracycline. Therefore, effective treatment of any of the above implicated diseases should include administration of antibiotics to which M. fermentans incognitus is sensitive." [Slides: Dr. Lo's portrait, patent cover, patent excerpt]

Congressman Bob Filner

We have enlisted Congressman Bob Filner and others for their support in bringing this epidemic to the attention of Congress. [Slide of Congressman Bob Filner of San Diego, CA, Senior Democrat on the Veterans' Affairs Committee, expert on Gulf War Illness] Must Reclassify Mycoplasmas The CDC, FDA and NIH, all have sections devoted to mycoplasma research. They acknowledge that mycoplasmas are contagious to farm animals such as pigs, chickens and cattle, causing arthritis, stunted growth, even death. Vaccines have been developed and used on animals for years. Yet, all these health organizations continue to deny that mycoplasmas can spread through the human population or cause illness. We demand that the CDC reclassify mycoplasmas as a reportable contagious disease if found in the blood and that they require every diagnosis of Chronic Fatigue Syndrome to be reported by physicians.

Recall CDC's CFS Booklet

The CDC must immediately recall its May 1999 Chronic Fatigue Syndrome booklet. The booklet advises patients not to be tested for mycoplasma infection. A new booklet should recommend testing for mycoplasma and other infections, and advise doctors that Chronic Fatigue Syndrome patients are responding to antibiotic treatment. The CDC must stop implying that this is a psychological disorder and stop recommending medications that lead to severe addiction.

d. "Theoretical and Experimental Tests A number of tests, some of which are offered commercially, have no demonstrated value for the diagnosis of CFS. These tests should not be performed unless required for diagnosis of a suspected exclusionary condition (e.g., MRI to rule out suspected multiple sclerosis) or unless they are part of a scientific study. In the latter case, written informed consent of the patient is required. No diagnostic tests for infectious agents, such as Epstein-Barr virus. enteroviruses, retroviruses. Human herpesvirus 6. Candida albicans. and Mycoplasma incognita, are diagnostic for CFS and as such should not be used (except to identify an illness that would exclude a CFS diagnosis, such as mononucleosis). In addition, no immunologic tests, including cell profiling tests such as measurements of natural killer cell (NK) number or function, cytokine tests (e.g., interleukin-1, interleukin-6, or interferon), or cell marker tests (e.g., CD25 or CD16), have ever been shown to have value for diagnosing CFS. Other tests that must be regarded as experimental for making the diagnosis of CFS include the tilt table test for NMH, and imaging techniques such as MRI, PET-scan, or SPECT-scan. Reports of a pathway marker for CFS as well as a urine marker for CFS are undergoing further study; however, neither is considered useful for diagnosis at this time. " [page 10]

Double Blind Studies Needed The CDC & NIH must fund double-blind studies with antibiotics to determine which are most effective against specific strains of mycoplasmas or we will demand that Congress take away funding from the CDC and NIH as it has taken away funding from the DOD for Gulf War Illness.

Mycoplasma Registry 303 N 47th Street, J-10 San Diego, CA 92102-5961 telephone: 619-266-1116 e-mail: mycoreg@juno.com © 1999 Sean & Leslee Dudley

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Letter to the Chronic Fatigue Syndrome Coordinating Committee

by Sean & Leslee Dudley

Thousands of civilians and military personnel throughout the world are now testing positive for Mycoplasmas fermentans incognitus; 80% with Chronic Fatigue Syndrome and 65% with Gulf War Illness. It is long overdue for CFS be acknowledged as a contagious disease, and not a psychological ailment. Dr. Garth Nicolson has provided accurate diagnostic PCR blood tests for the detection of Mycoplasmas. The VA is starting a double blind study for Mycoplasma using Dr. Nicolson's PCR blood test and antibiotic protocol. People on our Registry test positive for one to four species of Mycoplasmas. They are taking antibiotics, recovering and testing negative in one to three years. It's been a decade since we were both diagnosed with CFS. We caught it before the Gulf War began; Sean with irritable bowel syndrome and Leslee with Fibromyalgia and Lupus. We tried. many CFS treatments including IV gamma globulin, a double blind interferon trial and various medications. (Leslee is on page 96 of Dr. Jay Goldstein's "Betrayal of the Brain"). As Gulf War Illness became known, we recognized the symptoms as CFS/like. We tested positive for Mycoplasma fermentans incognitus, started antibiotic treatment and began recovering. Sean was the first civilian to be retested using a bone marrow biopsy. After seven months on antibiotics; he still tested positive. Two years ago, we appeared on national TV as civilians who had GWI/CFS with the good news that there was a PCR blood test and an antibiotic protocol. Responding to hundreds of phone calls, we started asking questions and keeping statistics. These are some of our preliminary findings. The Registry is 84% civilians, 16% military, 59% women, 28% men and 13% children.

How Did Their Illness Start?

56% attributed it to a probable airborne exposure. The 20% who caught it in a hospital setting after an accident or surgery, also indicates its contagious nature. The people with trauma or chemical exposure may have been previously infected, but the disease only fully developed after their immune systems were suppressed. However, 6 % caught it from vaccinations that may have been contaminated with mycoplasma or experimental live mycoplasma vaccines.




How Long Before They Were Disabled?



When Did Their Symptoms First Begin?

In the 1970's and 1980's, people became infected with M. fermentans after experimental injections while in the Armed Forces or in civilian prisons, as in Huntsville, TX. Their families subsequently became infected. As it slowly spread into the population, the numbers spiked as our troops were given vaccines in preparation for the Gulf War. The incubation period is 2 to 18 months.



Occupation At Onset?

People are likely to catch this disease as a result of their occupations. Contagiousness is demonstrated by the largest group being health care workers and the next largest group being teachers and students. It passes into the civilian community by people who have frequent contact with the public such as sales people, receptionists, lawyers, entertainers, waitresses and clerks. People we counted as having military connections, worked at or near military bases, in aerospace fields, dockworkers, merchant marines, truckers and airline personal.

Are Other Family Members Or Friends Infected?

With couples, when the first person to become infected is a man, 84% of the female partners tested positive. If the first partner to become infected is a female, 48% of the male partners tested positive. When one parent was infected, 92% of the children tested were positive. Most people on our Registry report close relatives or friends as becoming symptomatic. Even pets get sick and die. Registry's Recommendations Before the cold war, people who had CFS were suffering from a naturally occurring type of mycoplasma. Mycoplasma fermentans incognitus is a genetically altered biological weapon made more virulent, more drug resistant and more contagious. The Department of Defense owns the patents to it. The CDC and NIH have know about mycoplasmas for many years, having worked with the DoD. The only thing that has changed is that now, we the victims, know about it too.

1. CDC must reclassify mycoplasmas as a reportable contagious disease if found in blood/ 2. FDA must test all vaccines for mycoplasma contamination.

3. Blood supplies must be tested routinely for mycoplasmas, as is now done for HIV.

4. All military personal must be tested for mycoplasmas.

5. Health care workers, teachers and students must be tested for mycoplasma infection.

6. NIH must fund studies for mycoplasma research.

7. All Gulf War Illness research must be taken away from the DoD.

8. All CFS, GWI, and Fibromyalgia patients should be tested for contagious diseases such as: Mycoplasma, Chlamydia, Brucella, Streptococcus and HHV-6

9. Family members and pets of those infected should be tested and treated.

Mycoplasma Registry 303 N 47th Street, J-10 San Diego, CA 92102-5961 telephone: 619-266-1116 e-mail: mycoreg@juno.com © 1999